Talking to your healthcare team
Visiting your healthcare team can be daunting and you may feel overwhelmed. With that in mind, we have developed this short discussion guide.
You have probably spent your time since the diagnosis doing all that you can to support your loved one, becoming the best carer you can be. But have you thought about yourself? Have you stopped to look for support? If not, it is vital to know that you are not alone in this. Aside from the medical help you are receiving from your healthcare team, you can find support in several different ways.
Reaching out to family and friends can make a massive difference to
your support structure. The more people that you trust to talk to, the
more people you can lean on when you need them. Your family and
friends are probably waiting for you to reach out to them and perhaps
do not know the best way to talk to you about the diagnosis. Try
reaching out to one family member or friend this week and see if it
helps. If so, continue to reach out and grow your support
Speak with your healthcare team, they will be able to recommend local or online support groups. The World Federation of Hemophilia global community newsletter can help you to connect with other people living with hemophilia.