Discover more about the mental health impacts of living
with hemophilia and where to find support for yourself or a
The physical impact of living with hemophilia today is
well documented; however, the psychological, mental and
emotional impacts are not so obvious without looking a little deeper.
The non-physical burden of hemophilia isn’t something many people talk
about, but it is there; whether you are a carer or are living with a bleeding disorder.
The physical burden of hemophilia has an impact on people's mental
health and recent research has suggested that more people living with
hemophilia are suffering with depression, anxiety and
ADHD compared to the general population.
People living with hemophilia and carers are all different, and their
psychological support needs will also be different, but it
is important to know that there is a wealth of help available;
from online support options through to structured professional care.
Therapy in any form is a very personal experience, and as
such, finding the right support for you is something that is
best discussed with your healthcare team. If you decide to
pursue therapy, remember that difficult emotions may arise and this
is part of the process; however, there is no pressure to continue
if it doesn't seem to be working for you. Take a look at our 'talk to
your healthcare team' page for advice on how to have the
conversation about mental health.
As you will see in the video below, Olivia found support as a carer
through online support groups.