Talking to your healthcare team
Visiting your healthcare team can be daunting and you may feel overwhelmed. With that in mind, we have developed this short discussion guide.
HERO (Hemophilia Experiences, Results and Opportunities) is an international, multifaceted initiative that aims to deepen understanding of life with hemophilia. Find out some of the real-world impacts of living with hemophilia from across the globe.
HERO (Hemophilia Experiences, Results and Opportunities) is an international, multifaceted, multidisciplinary initiative that aims to deepen understanding of life with hemophilia. The HERO study showed that many people living with hemophilia and parents experience psychological/psychiatric conditions, due to the impact of hemophilia, yet few receive treatment.
of people living with hemophilia have reported having psycological/psychiatric conditions
of people living with hemophilia have received treatment for their psychological conditions
of parents have received psychotherapy or counselling their son’s hemophilia
of parents would have liked to (but did not) receive psycological support
these results demonstrate the need for psychological support for people living with hemophilia and their careers
Novo Nordisk_HERO fact cards.The physical impact of hemophilia greatly influences quality of life. November 2015.